I Was Told My Baby May Have Trisomy 21 (Down Syndrome): Advice?

A mom writes in asking for advice about trisomy 21, commonly known as Down syndrome. She says that she took the Panorama blood screen when she was 13 weeks and the results came back stating her baby is a high risk for trisomy 21. This worried mom asks for advice from other moms who have been through similar. Have any moms been told the same thing and gone on to deliver a baby who did not have trisomy 21? Any advice or words of encouragement for this mom-to-be?

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A member of the community asks:

“I was told my baby may have trisomy 21: Advice?”

“I did the Panorama Blood screen at 13 weeks; it came back high risk for trisomy 21 (9/10). Has anyone else had this done, and if so, did the baby, in fact, did have trisomy 21? Background I’m 28 and now 26 weeks pregnant. Thank you!!”

– Mamas Uncut Community Member

Community Advice for This Mom Who Was Told Her Baby May Have Trisomy 21 (Down Syndrome)

To see what advice the Mamas Uncut Facebook community has for this mom in need, read the comments of the post embedded below.

Fan QuestionI was told my baby may have trisomy 21: Advice?I did the Panorama Blood screen at 13 weeks; it came back…

Posted by Mamas Uncut on Wednesday, September 2, 2020

Advice Summary

I Was Told My Baby May Have Trisomy 21 (Down Syndrome): Advice?

The community offered this mom in need a lot of great advice. Read some of their responses below.

“The other side of this is… with my son he was high risk for Down syndrome, had extra scans, etc. but once he was born he was born without DS. But my next pregnancy with my daughter, hers came back low risk and she does actually in fact have DS. All I can say is I know you will be scared, but honestly, my daughter is the most amazing little girl and the best thing that happened to me. There is a lot of support out there, I hope you find the answers you are looking for and I wish you all the best.”

“I didn’t have the Panorama but my son has Down syndrome. You may be scared now but it will be okay if your baby does have it. My son is the best thing to ever happen to me. You can get a better answer to your question by joining a DS mom’s group. I like Down Syndrome, Support for Mommies the best. Search it on FB.”

“No matter what, everything will be okay, mama. I know the unknown is scary!”

“They can check in ultrasound for signs of Down syndrome. It should have been done at your 20-week anatomy scan. If they said your scan was normal then I would think the chances of your baby actually having Down syndrome are much lower.”

“My cousin also had that test and was told the same. She panicked her whole pregnancy! Did research and all that and he was born perfectly fine! I have been told by even my doc those tests are not 100% accurate. I refused it with mine because I know I’m a worrywart and I was not about to stress my whole pregnancy for nothing! Stay positive, there is a very good chance everything is completely normal!”

“I was told my son had down syndrome and he was born completely fine and is 26 years old now.”

“My son tested positive as well. Did they not immediately run the test again? They told me there are a lot of false positives.”

Do you have any advice for this mom? Leave a comment to help another mom out!

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