Celine Dion is opening up about what her day-to-day looks like as she continues to live with Stiff Person Syndrome. And giving a first look at her new documentary.
The trailer shows an emotional look at how Celine Dion became Celine Dion and the current health battle she dealing with. And the heartbreaking toll it’s taking.
In an interview with Vogue France, Dion admits she’s “well, but it’s a lot of work,” adding that she’s “taking it one day at a time.”
Dion continues adding that she hasn’t “beat the disease,” saying “it’s still within me and always will be.” But she’s learning to live with it and now she’s ready for her big comeback, eventually.
According to the living legend, Dion says that five days out of the week she undergoes “athletic, physical and vocal therapy. I work on my toes, my knees, my calves, my fingers, my singing, my voice…”
“I hope that we’ll find a miracle, a way to cure it with scientific research,” Dion continued. “But for now I have to learn to live with it. So that’s me, now with Stiff Person Syndrome.“
Dion admitted she used to question it all. “At the beginning I would ask myself: why me? How did this happen? What have I done? Is this my fault?”
But now, she done doing that.
“Life doesn’t give you any answers. You just have to live it! I have this illness for some unknown reason,” Dion told Vogue France. “The way I see it, I have two choices. Either I train like an athlete and work super hard, or I switch off and it’s over, I stay at home, listen to my songs, stand in front of my mirror and sing to myself.”
She’s chosen “to work with all my body and soul… I want to be the best I can be.” And now her goal is not only to get back on stage, but to see the Eiffel Tower again.
Dion admits she’s thankful she has the means to seek out good doctors and treatment, calling it “a gift.” She knows not everyone with Stiff Person Syndrome is so lucky.
But she also gets the strength to continue on and fight from her children, and also “the love of the fans.” “I have this strength within me. I know that nothing is going to stop me,” she adds.
As for when Dion will be back on stage singing for thousands, the singer admits she can’t answer that question at this time. “I don’t know… My body will tell me.”
And yet despite living day-to-day and the unknowns that come with that, Dion says “here’s one thing that will never stop, and that’s the will. It’s the passion. It’s the dream. It’s the determination.”
Nothing will ever take Dion’s legendary status away. “‘Today, I feel like a woman. I feel like a mother. I am a singer, a dreamer, before being Québécoise, American or French,’” she told Vogue France.
“I speak to my children in French or English. They think that I speak every language there is. I was born in Québec, my children were born in America. I have French blood, I have Québécois blood and American blood. And wherever I go, I sing in a different language, I learn something, I steal a part of the culture that impresses me.”
She is also someone who “feels strong and positive about the future,” she admits. “One day at a time.”