tiktok mom who documented her 6-year-old's disease announces he has passed on

TikTok Mom Who Documented Her 6-Year-Old’s Disease Announces He Has Passed On

Whitney Frost shared a heartwrenching video to her TikTok account on New Year’s Day to announce the death of her son Harrison, who died at the young age of 6.

Harrison suffered from Infantile Neuroaxonal Dystrophy, or INAD, a disease that affects motor skills and voluntary muscle function. The life expectancy for children who have INAD is usually 8 to 12 years of age.

Harrison’s older sister Riley, 8, has also been diagnosed with INAD.

The clip showed photos of Harrison with family members, along with captions explaining that “he went quickly” and “did not suffer.”

“We are devastated. But glad he’s no longer in pain,” the captions continued. Frost’s account has since gone viral due to her children’s health issues.

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Frost, who is also mom to eldest child Natalie, 17, posted just before Harrison’s death to report that he was doing well after having recently overcome a urinary tract infection that caused sepsis.

This past Monday — just two days after her youngest child’s passing — Frost posted to TikTok once again to update everyone that Riley “is not doing that great,” with a gastrointestinal bleed, fever, and other complications.

GoFundMe page has since been set up to “help the Frost family” sharing how both children were “born after easy pregnancies, no complications and no indication that anything was wrong.”

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The page description revealed how “in 2016, Riley was diagnosed with INAD after losing her ability to walk, talk, or crawl. Because INAD is genetic, Harrison was tested and had just turned 1 when we got his diagnosis, and he wasn’t even showing symptoms yet. It was the worst day ever — finding out that the 2 youngest children had INAD,” the description read in part.

“Now, in 2021, both children are bed-bound, can’t move, fragile and floppy as newborns, on feeding tubes, cannot talk and rely on parents or nursing staff to take care of all their basic human needs. Despite these circumstances, the children are extremely well-cared for and happy. The family is mostly in good spirits. Whitney and Jason are great parents, the nurses are wonderful people, Natalie and grandparents help out, and the community has rallied around this family – for which Jason & Whitney are extremely grateful.”

As of Tuesday night, the crowdfunding page has raised almost $26,244 of a $50,000 goal.

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